All in Personal Data Ownership

On Managing Health Data Programs: Some Thoughts After the Health Datapalooza Conference

As an extension of my own research and consulting on big data project planning and management, I wanted to improve my understanding of how data governance and program management practices impact how medical and health data are used.
In Whoops, I didn’t mean for you to read this Brian Solis explains Facebook’s new “frictionless sharing” model which gives people the ability, when they install a new Facebook app that makes such sharing possible, to decide whether or not they want their app-related behaviors to be automatically added to their Facebook timeline. This then makes it possible for Facebook followers to receive automatic notifications of these behaviors and provides advertisers with invaluable data on personal behavior and preferences.

Facebook Connect Raises Complex Data Portability and Data Sharing Issues

Successful system operation frequently depends on the quality of the data it contains. Social networking systems rely on the ability their members have to manage and keep up to date information about their identities. They also rely on the ability to describe and act upon data about relationships with other network members. If identity or relationship data are faulty, unstable, or inconsistent, the operation of the social network, and the performance of network based transactions related to it, will suffer.

What Comes After Web Sites and Online Social Networks?

Today we use the web in many ways. Traditional web sites — “places we go” on the web to do things — still exist. But increasingly, web based transactions also depend on the nature of our online relationships with other people.

Social Data Portability, Privacy, and DRM

When Bob Weber published his post-CES DRM 3.0 Has Arrived he made the point that, while DRM for music may be dying, the entertainment industry’s interest in Digital Rights Management is still quite strong. This got me to wondering whether this “next generation DRM” might have some relevance to current interest in social network portability.

Apple, iPods, and Personal Data Portability

I've been busy lately. My blogging has suffered. I've tried to update my blog's "daily notes" (located on my home page and archived here) but that's about it. I'm working offline on some longer white papers, I'm starting a new client project next week, I've been involved in a non-stop series of proposals and statements of work, and I've had to keep my plants watered during the drought here on the U.S. East Coast. Meanwhile, there are some really interesting "tech" things going on.

More Thoughts on Developing a Social Network "Portable Relationship Map" Standard

A couple of days ago I posted Do We Need “Portable Relationship Maps” for Social Networks? There I expressed some skepticism about the feasibility of developing a standard for mapping social and professional relationships, over and above basic personal description or identity data, that could be portable between social networking systems.

Should We Be Able to Buy and Sell our Personal Financial and Medical Data?

When I first heard about USA Today breaking the NSA domestic phone spying scandal involving the major long distance phone companies, I wasn’t surprised. I won’t even be surprised when, in the next few months, word leaks out that Federal agencies are also involved in non-court-approved electronic screening of domestic call traffic looking for specific words and word combinations.

Who Controls Personal Data?

Back in the Day, my favorite Latin quote was an example of the Ablative Absolute: “Eo Imperium Tenente, Eventum Timeo.” Loosely translated, this means, “Because he holds the power, I fear the outcome.” In some ways, fear and uncertainty exist today since, in many cases, people don’t understand, or even know, who has the “power” over how their personal data are used.